The links below provide access to a range of information on cancer, support services and fundraising events, both locally and nationally. For specific questions concerning your diagnosis or individual circumstances always consult your doctor.Please note that any medical information accessed on these sites should not replace the advise of your doctor.
NTRO updates these links frequently, however please contact us if you experience any difficulties accessing a site via this page. We would also be interested to hear of any websites or organisations you have found particularly helpful and think we should include on this page. Please send enquiries to Kavithasan.Vivekanathan@nt.gov.au or Giam.Kar@nt.gov.au
Cancer Australia was established by the Australian Government in 2006 to benefit all Australians affected by cancer, and their families and carers. Cancer Australia works to reduce the impact of cancer and improve the well-being of those diagnosed by ensuring that evidence informs cancer prevention, screening, diagnosis, treatment and supportive care.
The term ‘cancer pathways’ can be used to describe referral and treatment guidance for both health professionals and people with cancer.
A clinical pathway explicitly states that the goals and key elements of care are based on clinical guidelines, and best available evidence. It acknowledges patients expectations by facilitating communication, coordiating roles and sequencing the activities of the multidisciplinary care team, patients and their families; by documenting, monitoring and evaluating variances; and by providing the necessary resources and outcomes. The aim of a clinical pathway is to improve the quality of care, reduce risks, and increase patient satisfaction and increase efficiency in the use of resources.
In Australia, an example of clinical pathways are those developed by the National Health and Medical Research Council (NHMRC) for colorectal, lung, epithelial, ovarian and breast cancer (younger women, early, advanced), prostate cancer and psychosocial care of adults with cancer.
Patient Pathways aim to assist people with cancer to understand and navigate the journey ahead, providing information such as the tests and treatments most likely to be needed for a particular cancer. They are also useful for primary care health professionals and consumers to follow the likely referral and treatment pathways for particular cancers.
The CanNET NT Project has developed referral and treatment pathways for five common cancers within the Northern Territory; Lung, Breast, Head and Neck, Bowel and Prostate. The first stage in developing such pathways was to undertake a patient audit of the experiences and medical records of a sample of people who have received services related to cancer treatment in the NT.
The audit goals were to:
Enhance the coordination and continuity of care.
Develop a role delineation framework.
Develop and implement a streamlined referral system.
Improve communication between, and sharing of patient information between service providers.
Improve the quality of cancer services offered.
Provide access to best practice clinical guidelines.
The Project Team interviewed people with cancer (and their families) to find out about waiting times, what worked well during treatment and what could be improved. People who live in urban and rural/remote areas, and who are Indigenous, English speaking non-Indigenous, and non-English-speaking non-Indigenous were included in the project. In addition, people’s stories were linked to their medical charts to begin to develop an understanding of timelines for treatment and referral for cancer services in the NT. The information from the audit informed the development of referral and treatment pathways related to cancer in the Territory.
The second stage in developing treatment and referral pathways involved consultation with working groups who had expertise in providing cancer care for particular cancers within the NT, for example, care for breast and lung cancer.
The five Patient Pathway booklets have been printed and disseminated to Hospitals, Remote Health Clinics and stakeholders across the Territory. Online versions of the Patient Pathways and Patient Audit are available on the Publications page.
‘The Cancer Council NT is a non-government, charitable, community based organisation committed to raising funds for the purpose of reducing the impact of cancer. It achieves this by providing information and support for people affected by cancer.
Cancer Council NT have a range of different services available to people impacted by cancer. Some of these include; cancer support nurses, resources and information, wig service, couselling, legal and financial planning, financial assistance, cancer support groups, breast prosthesis and bra fitting, advocacy, health promotion and an ostomy service.’
‘Prostate Cancer Foundation of Australia (PCFA) is a broad based community organisation and the peak national body for prostate cancer in Australia. We are dedicated to reducing the impact of prostate cancer on Australian men, their partners, families and the wider community.’
‘Breast Cancer Network Australia (BCNA) works to ensure that Australians affected by breast cancer receive the very best support, information, treatment and care appropriate to their individual needs.’
NT Breast Cancer Voice are an advocacy group based in Darwin, who aim to improve services and conditions for all Territorians affected by breast cancer.
You may also be interested in BRASNT– an alliance of breast cancer related support services in the NT.
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‘Lung Foundation Australia supports all aspects of lung health from asthma to cancer to COPD. We are a national organisation which supports research, develops educational fact-sheets, trains health professionals, and undertakes community awareness activity and advocacy around Australia.’
‘CanTeen supports young people when cancer turns their world upside down and helps them cope with the physical, emotional and practical impact of living with cancer. We provide specialist hospital care, counselling and individual assistance as well as information and peer support programs for 12-24 year-olds affected by cancer.’
‘Our organization works 1-on-1 with individuals affected by lung cancer, mesothelioma and asbestosis to help them find local doctors, treatment centers and support group. Asbestos follows through with clinical trials in being precise with having sources such as the symptoms, causes, diagnosis, life expectancy, survival rates and stages of this prognosis.’